June 1st 2018

I’m happy to report that my six-month checkup at the U.C.S.F. satellite clinic in Modesto went really well.

Various tests run on me indicated that my lungs are still in good shape. So much so, that I blew the one face mask right off my face. The respiratory therapist was caught unaware and a little alarmed!

I continue to be able to walk, talk, eat and breathe fairly normally. So, it’s all a mystery to me after nearly a year of being diagnosed with ALS. Actually, that’s the wrong word to use. It’s a delight.

I know I was told that I had a slow progression right from the start. So, long may it continue – or even be miraculously cured! But I mustn’t raise my hopes too much as I still continue to experience right footdrop, and the usual tremor in hands, fasciculations and slight neuropathy in my feet, plus cramps in my hands when they get cold. Apart from that, well, no more stress from work; I love going to the gym at 4 o’clock in the morning (yes, it’s true) and I try to eat sensibly.

I have this one good friend of mine who lead me astray a week ago, and I did not drink sensibly. Don’t tell anyone. But, it does take two to tango. And we may have ended up even doing that together. I can’t remember.

On a serious note, my heart goes out to all those who are really struggling with ALS right now. It’s only when confronted with such people at close quarters that one really begins to appreciate the situation. We must press on the best we can and wish for a real cure soon.

I see that there are over 50,000 people living with ALS in the United States alone. As many as those who are diagnosed with the disease each day die each day.

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