December 1st 2018 End of year Report.

So, it’s the beginning of December already, and the rains have finally fallen!

Much has happened since my last blog. Terrible fires and smoke enveloping California and now we hear of earthquakes up in Alaska! We don’t talk about “global warming” any longer, but “climate change”. I guess we can’t dispute it, but won’t get into that.

Let’s talk about climate change in the realm of advances in ALS research.

I was fortunate enough to attend the Champions for Care and a Cure event in San Francisco on Friday November 11th. It was a well-attended event with some excellent speakers together with a couple of videos of Rusty Selix and Pat Quinn – two strong advocates for a search for a cure for ALS. If you don’t know them, then watch the videos on my Facebook page. Two champions who continue to fight on like many others suffering from this beast of a disease.

I continue to be blessed with minimal hindrances at this stage, and I

thank God for that.

I do my best to keep in touch with members of my local Turlock care group which covers Stanislaus and Merced counties. We support and encourage each other to the best of our ability. It’s no fun slowly losing the ability to use hands and legs, talk, swallow and breathe. All we can do is show compassion for one another and try to put a smile on our faces once in a while. Sure, it’s hard. But what else can one do? We keep looking forward to a genuine cure for Lou Gehrig’s disease, aka amyotrophic lateral sclerosis, motor neuron disease or whatever other disease out there that has no cure at this stage.

May you all have a Merry Christmas as you gather with friends and family, and don’t forget to pay special attention to those who are hurting so badly. Be grateful for your own blessings and show compassion and love for those who need it most.


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